Rare Dementia Support

Alzheimer’s disease is the most common cause of dementia, but there are many other diseases and conditions that can lead to dementia. These conditions are rarer, can occur at a younger age, and can cause symptoms that are not only memory-related. These include difficulties with vision, language, movement and behavioural changes.

Between 5% and 15% of people living with a dementia receive a diagnosis of a rare, inherited or young onset dementia. RDS provides support for 6 rare dementias. These are:

Posterior cortical atrophy (PCA)
Primary progressive aphasia (PPA)
Frontotemporal dementia (FTD)
Familial frontotemporal dementia (fFTD)
Familial Alzheimer’s disease (FAD)
Lewy body dementia (LBD)


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